talkingaboutcancer.com

The day, the hour, the minute you are diagnosed with cancer is the beginning of a long, arduous and often painful journey for you and those who are close to you. Regardless of the physical type of cancer you have been afflicted with, you now have to deal with an emotional disease, unlike anything you’ve had to face before. You’re body is trying to kill you! How’s that for a trip? What does that do to your sense of immortality? What’s really important now? These are all huge issues that will affect you in profound ways, but we all seem to be poorly prepared to deal with them. And not just us, but also the doctors whose job it is to diagnose us and then drop the bomb. What do we do when we are blindsided like this?

For me (and I suspect for most), the initial diagnosis was a blur. I certainly wasn’t expecting it (I was told that the lump on my prostate was “probably nothing”), but I definitely wasn’t in my normal analytical mode. My appointment was first thing in the morning after a long weekend and, while I know I ruined the doctor’s day, it sure started mine off with a bang. I was in a suit on my way to a meeting with clients. I was expecting to be told that it was nothing, so this hit me like a lightening bolt. The doctor read me off a bunch of facts and laid out several options to consider and then sent me on my way. I stopped by the house to tell my wife and then left her to go to my meeting. I had a bomb dropped on me and then I dropped one on her and left! I didn’t realize the significance of that until much later. Bless her for not reaming me out, because I deserved it. She had just been diagnosed with the same emotional disease as I, and I went off worrying about myself! Does that make me a selfish boor or is that “normal”?

For the rest of the week, we both dealt with the diagnosis in different ways. I told no one else and I completely avoided focusing on it. It was there, but it was like a dark cloud hanging over me that I refused to really acknowledge. Denial? Shock? Normally, I would be all over the Internet and in the bookstore researching everything I could find, but I didn’t even hit a website until the weekend. Meanwhile, my dear wife was buying books, phoning support groups, contacting doctors, all on my behalf. She was looking for help for me, not even thinking that she may need help too.

So I ask you – how could I have handled this better? Do you think you need some denial time to allow yourself to adjust to this new reality? Should I be chastised for treating my wife badly? Do I really need to feel guilty about this?

Let’s leave the doctors out of this for now (we’ll deal with that more specifically in a future blog). Let us know your thoughts. Tell us about your immediate post-diagnosis experience. Was it the same? Was it worse? What are your thoughts on how to handle the impact on our loved ones? If you are the spouse, child, lover, parent or friend of a cancer victim, what are your thoughts? What were your experiences?

Let’s talk.

Posted by Doug

4 Comments »

I personally was not diagnosed with cancer, but I am a victim of this horrible disease. Too many of my relatives, including my husband, sister, and sister-in law have been hit with cancer. As a small child, both of my grandfathers died from cancer. One had lung cancer that spread to his bones, the other had leukemia. At the time, I didn’t quite understand what “cancer” was or meant. Whenever my parents or anyone else spoke of “cancer” it was with hushed tones…why? I just knew I didn’t want it.

As the years passed, and cancer didn’t impact on my family or friends, life was good. Cancer didn’t seem quite as scary for a while.

Then, in the fall of 1996 my sister was diagnosed with what we thought was lung cancer. She called me to tell me something was off about her tests and further investigation was required. The biopsy she had showed that she had cancer and required the removal of part of her lung. She was pretty scared. We were all very hopeful, but then got the news that the cancer was actually melanoma that had metastasized. Our world was about to change in a very big way. My wonderful husband arranged for our family to move back to Toronto, where my sister lived, and rented the house next door to her. This enabled me to go back and forth with ease to help her and her family. You have to understand how I felt about her…she was really like a Mom to me…I couldn’t lose her…we were going to grow old together. In Sept of 1997 she lost her battle with cancer. Everything has changed now that she is gone. The impact of losing her affected many people. She was a truly loved and remarkable woman. She was the core that held our side of the family together and now that is gone. I miss her so much and not a day goes by that she isn’t in my thoughts. Cancer changes families. It’s like a hurricane that lands with mass destruction and takes away whatever it wants. This Sept is the 10th anniversary of her passing…it doesn’t feel that long. Life does go on. Her husband remarried. Her children married and now have their own children. She would have been a great grandmother. My sister lives on in all of our hearts.

Since then, my sister-in-law and my husband have been diagnosed with cancer. Thankfully, they are still with me and I never take for granted the time we have together. My fear in life is that if I should ever get cancer, will there be someone there to take care of me?

Posted by Dianne (guest post)

2 Comments »

When you are first diagnosed, it is extremely important to bring someone with you when attending appointments and clinic visits. You will receive a lot of information in these sessions and at times it may be overwhelming. Having someone with you can be very helpful… two heads are better than one! Have your partner/friend/loved one take notes for you so that you can be free to take in as much information as possible without worrying about documenting it at the same time. You will find having someone with you to be very emotionally supportive, in addition to the benefit of having someone to talk with during those never-ending wait times for appointments and tests. Moreover, in the process of information gathering, teamwork is very helpful. First, you and your partner can usually gather more information than either one alone. Second, you may want to divide your information-gathering activities in accordance with abilities and interests. Third, you are going to find that some of the information you receive will be very anxiety-provoking. Facing it together, in a mutually supportive way, will help you enormously to sustain a degree of calm and clarity.Who did you bring with you? Did it help? Or did you have to go it alone? I hope not. Tell us your story.

Let’s talk.

Posted by Andrew

4 Comments »

Pushing the edge reminds me of how I felt at the end of my long ordeal on chemotherapy. I had no hair, few white blood cells, very low iron stores and one less boob. I was at the edge of life. I don’t think that my body would have tolerated another bout of chemo. There had already been numerous treatment complications such as fevers with low blood counts and various infections that could have done me in.But a year later I had hair, lots of white blood cells and plenty of iron. My color returned to normal and I had my energy back full force. I was absolutely amazed at my body’s ability to recuperate from such harsh treatment.

Since my cancer diagnosis, I have taken up running. I’ve given up my couch potato lifestyle and joined those crazy runners/joggers that you see pounding the pavement in all kinds of weather. I’m in my runners 3-4 times each and every week.

I have rarely had the enthusiasm for anything “sport-like” so I am frankly surprised that I have been so persistent in this activity. I was a fat kid and pretty clumsy. But I have been pushing the edge of my abilities since I began 3 years ago.

It occurred to me today that I push myself to run longer and faster just so I can see what else this old body can amaze me with. Another part of me runs because it feels so good to do it. And if I’m really honest with myself, I bet I’m really trying to run away from the demon that lives inside me that is called recurrence.

How do you try to push the edge? What are you running away from?

Let’s talk.

Posted by Ruth

1 Comment »