talkingaboutcancer.com

This past holiday season was, as always, a great time to get together with friends. Being diagnosed with cancer, and experiencing how different people react, causes you to really think about who your real friends are, what you need to get from a friendship, and how you want to be as a friend. Some of the recent comments on this site have dealt with friends who have deserted and the terrible feelings of loss this brings at a time when we are most vulnerable.

Having cancer convinced me to turn my back on “toxic personalities”, people who sucked my energy without giving anything back. But I was also surprised by how some people, who I thought were really close, seemed to distance themselves from me. Equally surprising was how some, more casual friends really stepped up and showed me an incredible amount of compassion. I decided then to focus on a smaller number of friends and to concentrate on being a good friend to them. So while I love being with people, I will always choose a small gathering at a friend’s house over a party. And you know what….. it works. I miss some of my old friendships but I am getting so much out of my current ones (including some long-standing ones) that I know I’ve made the right decision. Having said this, I still have lots of more casual friends and will always, always have room in my life for new friends.

To all my friends, past and present, I say thank you for being a part of my life. To all of the new people I am meeting, including some very special friends that I have met through this blog, I say thank you for coming into my life.

Posted by Doug

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It’s that time between Christmas and New Years when there seems to be lots of parties and get-togethers and, often, a lot of stress. For people with cancer, it can be a difficult time because their cancer can take some of the fun out of the holidays. You may be undergoing treatment, or worse, wondering how many Christmases you have in your future (and that could just be fear talking). Cancer can become a topic of conversation around the dinner table or over drinks. Just mentioning that you have or had cancer can spark a listing of everyone that has ever had cancer of any type, who died, what treatments they had. Probably not the most uplifting holiday fare.

It can be the same for our loved ones as well, who are saddened by our situation. And for everyone who has lost someone to cancer and misses them at this special time of year.

What to do? Enjoy the days. Whatever your beliefs, it is a time to relax and be with people you love and who care for you. Revel in it and enjoy each day as it comes. Remember those we have lost with fondness for all that they have given us in their time and strive to create your own good memories that will carry you through the potentially bad days to come and that can last in the hearts of your loved ones forever. That’s what I’m doing.

Happy holidays to all and the very best in the new year!

Posted by Doug

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Reading Lori Hope’s book ( see previous post) really highlighted for me how awkward it is when the subject of cancer comes up.  It’s one thing to talk about other people, but when it’s you or the person you are talking to who has cancer, it’s a whole different ball game.  When I was first diagnosed, I eventually told a lot of people and I was amazed at the variety of responses.  Some friends who I thought would be very empathetic and supportive were very uncomfortable talking about it while some casual acquaintances were amazingly warm and, well…. energizing.

I don’t really know what I expected, but I learned first hand what an uncomfortable thing cancer was.  It really is the elephant in the room.  If you have cancer, it is always on your mind, but I think other people don’t even want to talk about it.  Sure, friends and family want to know how you are and want to be supportive but, let’s face it, its not a happy topic.  Sometimes we don’t want to talk about it at all, but sometimes we just want the people we care for to acknowledge our pain.

So what do you say to someone you know who has cancer?  I’m sorry…..? You look good……? How are you feeling….?  If you have cancer, what do you want to hear from your friends.  Let’s hear your thoughts.

 Posted by Doug

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I just finished a fabulous book written by Lori Hope, a lung cancer survivor, entitled help me live … 20 things people with cancer want you to know. Lori wrote the book based on the results of a survey she conducted and the stories of many, many people whose lives she has touched through personal relationships, interviews and her extensive speaking engagements. As a cancer survivor herself, she has had a front row seat to many of the experiences she writes about, and this personal perspective gives the book a very special intimacy.

Notionally, the book is written for the family, friends and acquaintances of people with cancer but, as I read it, I could see my own experiences as a cancer patient and survivor mirrored in the stories of so many others. In so doing, it gave me strength from knowing that I am not alone.

Lori is one of the good people who has chosen to turn her own experience with his horrible disease into a positive force for helping all of us to cope and to live. I highly recommend this book to everyone touched by cancer. Check out Lori’s site at www.lorihope.com.

Posted by Doug

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When you are first diagnosed, it is extremely important to bring someone with you when attending appointments and clinic visits. You will receive a lot of information in these sessions and at times it may be overwhelming. Having someone with you can be very helpful… two heads are better than one! Have your partner/friend/loved one take notes for you so that you can be free to take in as much information as possible without worrying about documenting it at the same time. You will find having someone with you to be very emotionally supportive, in addition to the benefit of having someone to talk with during those never-ending wait times for appointments and tests. Moreover, in the process of information gathering, teamwork is very helpful. First, you and your partner can usually gather more information than either one alone. Second, you may want to divide your information-gathering activities in accordance with abilities and interests. Third, you are going to find that some of the information you receive will be very anxiety-provoking. Facing it together, in a mutually supportive way, will help you enormously to sustain a degree of calm and clarity.Who did you bring with you? Did it help? Or did you have to go it alone? I hope not. Tell us your story.

Let’s talk.

Posted by Andrew

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